WARNER ROBINS, Georgia (41NBC/WMGT) - A teen boy's only hope for a sickle cell cure depends on if his family raises enough money to send him through a statewide case study.
Warner Robins resident Micah Shorter was the last patient selected by a north Georgia hospital board to participant in a sickle cell case study. The goal is to find a cure for the disease.
"It's a throbbing pain, so it feels like a chainsaw...like someone has a chainsaw to your back, or your arms, or whatever is hurting at that moment," says Shorter.
The 17-year-old has been living with the blood disorder his entire life.
He was selected by an Egelston Hospital review board in Atlanta.
"The bone marrow transplant is basically just replacing my bone marrow with a donor's bone marrow," says Shorter.
Micah's mother and father, Sharon and Donald Shorter, each a have a trait for the disease, which added the risk they would have a child with the disease.
"If very difficult when you're with your child and they're screaming in pain, and really nothing that you can do," says Sharon Shorter.
However, this family says they've found a way to cope through the years of suffering.
"Laughter, spirituality love...that gets us through," says Donald Shorter.
His sister Davonna Shorter says Micah's ongoing pain started in the 5th grade.
Each day as the disease gets worse, the Shorter family says they pray harder, that through the case study, a cure for sickle cell is found.
"New beginnings...new beginnings," Donald says, "God willing this will work, and he will be cured of that. That means he can really truly begin to realize his true potential."
It's a struggle the entire family hopes will come with a cure.
The family's insurance company is taking care of the bone marrow transplant, but Micah still needs $45,000 to cover accommodations, food and other necessities for more than 6 months. The study starts on March 31.
If you would like to donate, send your donations to:
Wells Fargo Bank
Routing Number: 061000227
Account Number: 8531984121